SHADOW OF A FAT MAN

 

Saturday, October 13, 2005

Minus 39 days (until my gastric bypass surgery)

          I roll my 351-pound body out of bed at 8:30, whisking off the full face C-pap mask that regulates my breathing as I sleep.  Sitting on the side of the bed I try to decide whether to take my meds now or wait until after my walk. Fear of forgetting later prompts me to open the drawer and swallow my diuretic, blood pressure medicine, and heart medicine pills.  Then I prime the blue plastic disc and inhale the corticoid-steroid that helps my lungs function better.  My back aches from another toss-and-turn night, futilely trying to find a comfortable position where some part of my weight is not exerting excessive pressure on some other part.  I see that my toenails need cutting and dread the effort of trying to trim them.  Fortunately, I find the long surgical scissors in my wife’s bed-table drawer that allows me to reach my nails from a distance.  Even with their aide I’m breathing heavily by the time I finish, and must ask my wife to trim the left little toenail I can’t reach.  I’m past the point of being depressed by this.  There are so many activities that people take for granted that are almost impossible for me to achieve at my present weight.  I struggle to put on my socks and tennis shoes for my morning walk.  My doctor says I need to lose another eight pounds before my gastric bypass surgery on November 22nd.  Today is my granddaughter’s birthday party.  She’ll be six.  I’ve been threatening to start this book for more than a month.  My other books are unhappy about it, but with so many people opting for this type of surgery I thought it might make a worthwhile read.  I promise to record something every day of the journey until the shadow of this fat man emerges and solidifies to become a normal size human being.  But first lets trace a few of the steps that brought me to the precipice of either death or a strange new life.



“Who Is That Fat Man In The Mirror?”


          Only recently have I been able to come to accept that I am one of the legions of morbidly obese people in the First World.   Despite the fact that there are many people as heavy, or heavier than I—somehow I’ve never identified with that group until recently.  My family is always reassuring me that I don’t look that big, but over the last two years my perceptions have begun to come into line with the truth.  I’m huge.  From the front, it’s not too bad, but from the side my profile rivals any last term pregnancy.   I used to tell myself that a lot of American Natives are heavy.  After all, eating right is expensive, and food has always been one the things that comes last on our list of monthly expenditures.   Our eating habits are generally poor and that is reflected in the pandemic of diabetes presently decimating Natives in America.  Fortunately, diabetes is not one of my particular ailments. 

          I was always a “big-boned” child but I didn’t really start to get fat until my later teens.   I never liked cooked vegetables and have seldom eaten them throughout my life.  I do like fresh vegetables, and where we’ve been able to grow our own, I’ve eaten more.  But in general, I could probably count the times I ate vegetables between 1968 to 1976 on my fingers and toes.  (During that period, I did eat a lot of natural salads, cooked fruits, goats milk products, and natural grains so maybe my previous statement is misleading.  But even to today, though I do enjoy fresh steamed corn, new asparagus, broccoli, cauliflower, and green beans, I probably eat vegetables less than three times a month.)

Even though I loved athletics and had a fair amount of natural talent, I didn’t have the temperament or discipline to deal with hard-ass coaches and schedules in the public school, especially after we moved to California from Texas (where talented athletes are treated like Gods.)  I was a rebel who resented authority and fit in perfectly with the late “sixties”.   Since I wasn’t particularly interested in exercise apart from athletics, I didn’t attend school and was fairly inactive most of the time.  I was also addicted to sugary sweet desserts, peanut butter, milk products, and other fatty foods.  At sixteen, one of my favorite meals was peanut butter and butter on wheat-berry bread, packed with potato chips, and covered in Cool Whip.  I washed that down with a chocolate milkshake.  By 17, and at only six feet tall, I ballooned up to 225 pounds.   I was still fast on my feet but was definitely pudgy and depressed.

          In keeping with the times, I began to smoke marijuana and experiment with hallucinogens during the last four years of the sixties.   I went out on the road, hitchhiking all over the country, but even though I went without money, I didn’t lose much weight.  I’ve never had portion problems; I just eat the wrong things at the wrong times, sometimes in excess.

          By 1969, I was living in the Berkeley area and working in a Telegraph Avenue store during the riots.   I didn’t have much money left over after rent, and without a car I had to walk everywhere.   I ate only once a day and slowly began to lose weight. 

In the summer of 1970, as Richard Oakes and the All-Tribes group were occupying Alcatraz Island, I hooked up with two brothers from the Pit River Tribe and ultimately became active in the Red Power Movement.  Food was a luxury.  Venison and potatoes, squirrel and rice, garlic and beans—these were the main courses we enjoyed.  There was no money for sugar foods and no refrigeration for milk products.  I was hitchhiking and walking literally thousands of miles each year, sleeping outside on the ground, and eating less and less.   Many nights we hunkered around the fire with plates piled high with brown rice flavored with a little mustard. We’d take bites of garlic cloves and shovel in the rice with flat bread baked on rocks to moderate the garlic burn.  Water was our drink, and jerky our snack.  For sweets, we’d eat small amounts of crystallized honey.   In less than a year, I lost forty-five pounds and was feeling great. 

In late 1970, I contracted Hepatitis A and my weight plummeted further to 155 pounds, the lowest weight I’ve ever been as an adult.

By mid-1971, we were living in Montana, eating mostly wild meats like elk, moose, deer, bear, duck, raccoon, squirrel, and even muskrat.  My weight climbed back up into the 180’s.  We returned to California in late “71” due to the difficulty of finding winter employment.

In 1972, we drove east to Ohio on an ill-fated attempt to relocate to Canada and ended up hitchhiking back through Montana, finally returning to California.  My weight stayed around 180.

In 1973, I went to Chicago to rescue my brother and to try and jump-start a music career through a contact with Curtis Mayfield’s company.  We stayed with a friend who ate only fried potatoes and onions, augmented with cheese.  Occasionally he’d eat a rice cake with peanut butter and honey, but that was it, nothing else.  Living there, my weight went back down to about 170 pounds.  I was doing a lot of yoga and achieved the best flexibility of my life.

When we returned to California, we began living a low cost nomadic life.   My weight climbed back up to the mid 180’s.  Over the next two years of living in the mountains, foothills, and deserts of the Western U.S., my weight stabilized around 180 pounds.  I became addicted to running and often ran up to five miles a day.

Since 1971, we had been participating in regular Native ceremonial life, which involved periods of fasting.  Going four days without solid food was common and we made that sacrifice regularly.  In 1973, my brothers and I began experimenting with longer and longer fasts.   Some months, we fasted every other day.  Some months we’d fast for seven to ten days, drinking only orange juice and water.  Finally, we began to get used to going without food for longer periods.  My longest fast was 28 days, with juices.  My older brother was going to college when he fasted 42 days.  He came home one day complaining that he could see colors coming out of his professor’s mouth and figured he needed to eat again.  We broke his fast with a pizza.  One of my brothers went 60 days.  He was still working in Reno when we caught up to him.  Right away, we could see he was dying.  He’d completely lost the desire for food, had contracted scurvy, and was living on shots of 151 proof rum.  We forced him to eat, and fortunately, he survived with no visible problems.   I know it sounds crazy, but at the time it seemed a perfect solution to poverty.  We didn’t have to spend the little money we had on food.  We got used to fasting and a lack of desire to eat.  Perhaps the fasting became addicting, I don’t know.

Some people, particularly doctors, have challenged my truthfulness, claiming we couldn’t have survived those lengths of fasts without visible effects.  We know differently.  Not only did we fast those lengths of time; we stayed active driving, traveling, going to school, and working.  We did notice certain disabling effects during the longer fasts, particularly in driving and other activities that required broad attention to the surrounding environment.  In general, though, we functioned perfectly well.  After my brother’s close brush with mortality, we gave up extended fasting and returned to a maximum of four days at any one time.  However, we still often fasted every other day during some months to try and lose weight.  It is my belief that though we may not have seen visibly detrimental effects from this fasting, we seriously disrupted our body metabolisms by this abuse—which subsequently contributed to our gains in weight over the next few decades and our inability to regulate or lose excess pounds. 

I met my wife, Bernie, in 1975.  Though we continued to move around a lot, by the time our second child was born in 1977, we were reintegrating slowing into mainstream society, becoming more and more sedentary.  Other than short diversions to live in the deserts of Northern Nevada, southeastern Arizona, and along the Salmon River in Northern Idaho, we settled our family primarily in Sonoma and Lake Counties of Northern California.  Our lives began to reflect the mundane qualities of American life, and the pounds began to attach themselves to me. 

I resumed my teenage habits and by the early 1980’s gained almost 55 pounds.  At a weight of 245, I decided to do something about it.  During a period of winter-enforced unemployment (I was now a landscaper), I began to workout 2-4 hours a day, including running and martial arts training.  I reduced my calorie intake to less than 800 per day, using SlimFast, eating primarily yogurt, cottage cheese, granola bars, and ½ sandwiches of turkey and chicken lunchmeats.  At the age of 30, and over a period of four to six months I lost approximately 60 to 70 pounds to attain my best weight of 180.

I stayed active throughout the next few years, working at a physically demanding job landscaping, but still my weight crept higher and higher. 

By the mid-90’s I was participating regularly again in our Native ceremonial life.  I originally gave up alcohol in my early twenties, because of similar activities and encouragement from Native elders.  The rigors and responsibilities of the Renewal Dance demanded that I give up marijuana and recreational drugs permanently.  I had tried to give them up in my late thirties, after twenty years of hiding it from my parents and then my children, but this time I was successful.  Unfortunately, I was unable (or unwilling) to give up my dependence on sugar foods and desserts—my weight continued to increase significantly.

By the time I was in my mid-forties I was running my own business and my weight had climbed back up into the mid 200’s.   It became more and more difficult more me to do the harder work demanded by my job.  I went to the doctor and got medicines to control my appetite. I tried all kinds of chemicals and fad diets—but I was yo-yoing without any success. 

At forty-seven I was diagnosed with Hepatitis C.  I did a year of chemotherapy and Danced again and it became undetectable in my blood.  Instead of losing weight from the chemotherapy, I gained another ten pounds.

Just after my forty-ninth birthday, I was at my highest weight ever—up to that time—about 290 pounds.  I was preparing to fulfill my Ceremonial pledge for my final Dance.  I worked out every day lifting weights, doing martial arts and aerobic kickboxing and lost down to 271.  I went to New Mexico to fulfill my commitment and returned to immediately gain almost forty-two pounds. 

Now I began to get scared.  I was 313 pounds.  I was beginning to doubt my ability to drum up enough self-discipline to ever get back down to a livable weight.  I tried an all-protein diet and lost thirteen pounds only to immediately gain back twenty.  Every time I tried to get into a routine of exercise and reasonable diet, something caused me to stop.  My body had begun to start breaking down.  I had to have both my knees scoped to remove cartilage damage.  My doctor warned me that one of my Achilles tendons was ready to break anytime.  My blood pressure went up enough that my doctor put me on medication.  I began to suffer nausea and dry heaves every morning and scared my wife to death when I would almost asphyxiate myself by breathing my saliva as I slept.  Eventually that started to happen even when I was awake.  My weight climbed over 330. 

I had to sell my business because I was no longer able to do the work effectively.  I felt terrible, with extreme fatigue in the afternoons and general malaise.  I passed out from coughing one night while driving back from the city after having a CAT scan of my brain.  The scan was scheduled because of a slight sagging on one side of my face and the slurring of words when I talked.  The scan showed no evidence of stroke, but the passing out from coughing continued. 

After twenty-three years in the same place, circumstances caused us to have to move.  The stress of moving was tremendous.   We were leaving the place where we had raised our children.  We found a small house in town that was five times the monthly rent we’d been paying for more than two decades.   Fortunately, I also found a job coordinating a language preservation grant for a local Tribe.  I’d worked outside all my life, getting some sort of daily exercise even at these heavier weights.  Now I was working ten to twelve hours in an office at a computer.  My weight shot up to 360 pounds.  I could feel my body dying.  I had great bouts of depression and found it difficult to walk and do mundane things.  I suffered from partial impotence and was diagnosed with sleep apnea and suffered at least of two bouts of pneumonia, and two of severe bronchitis in those two years.

I saw a TV documentary about a gastric bypass and began reading about it on the net.  I talked to my doctor, and though he personally did not approve of my having the surgery, he consented to making a referral for me to a gastric surgeon.

I had a difficult time finding surgeons that took my insurance in my area. The closest, located in Santa Rosa, wanted ten thousand dollars up front.  For all the years before my job with the Tribe, I had never had any private insurance.  In lean times I had periods of Medi-Cal coverage, but hadn’t had that in more than a decade.  I found the name of my current surgeon on the Internet and initiated the contact for laproscopic bariatric surgery myself.  My doctor required five thousand dollars up front.            I went to my first preliminary appointment in late June, knowing that my job—and my insurance—would be ending on August 30th.  The doctor seemed to be moderately convinced that it might be possible to accomplish the surgery by then so we started the necessary series of tests required for approval by my insurance.  With my history, I needed to consult a cardiologist, a pulmonary specialist, and have any number of scans and tests done prior to a mandatory psychological review and dietary counseling.

My preliminary pulmonary tests showed that I might have a problem but subsequent tests showed the disease to be in a preliminary stage with minimal damage present in my lungs.  My surgeon had made it clear that he would not approve the surgery if I had existing problems that pointed to life threatening conditions.  He wouldn’t take the chance of putting me on the table if I was just going to die in a few years of something else besides obesity related problems.

The surprise came from my cardiologist.  He was tremendously supportive and positive about me having the bypass and wished me success when we scheduled my next six-month checkup.  The shock came when my surgeon notified me that my cardiologist’s report had showed some heart problems and he wanted to take some time to review them.  By now we were into August and after another late notice for another test that had been missed, it was obvious the surgery would not occur before my job ended.  My employer was going to extend my insurance for one month past the layoff date so I was covered until September 30th

Near the end of August, my surgeon’s office called me and the nurse made it a point to tell me that they were requiring that I keep my insurance current beyond the September 30th date.  Cobra would cost me almost $800 a month at my age and secretly I resolved to dump it as soon as possible after the surgery.  Fortunately, my wife stepped in and had me put on her insurance at a cost of about $320 a month.  I already was facing the possibility that the costs would force me to declare bankruptcy, but the alternative was unthinkable.

I had the final appointment with my surgeon prior to setting a date for surgery.  He informed me he was very concerned with the possibility I wouldn’t make it off the table alive.  I told him that it was an issue of quality of life and that I would risk it.  He insisted on taking more time to look at my records, to consult with the anesthesiologist before making a final decision.  I went out of his office depressed and slightly angry.

It was almost six weeks before I finally got the go-ahead and the date for the pre-op appointments and the surgery itself.   The pre-ops would be November 3rd and the surgery November 22nd.  I was going to spend Thanksgiving in the hospital.  To be honest, I was looking for another doctor who could do the surgery and not charge me the $5000 up front, but the only one I could find was busy and wouldn’t do it laproscropicly.  I just didn’t have the energy to keep looking.  After all, I had/have a date and we’ re prepared to spend all our savings. 

So now, we’re up to date.  We’ve been homeless since the end of August and had been living in our kid’s apartments.  My wife is commuting to work and I’m still producing and editing a historical documentary a few days a week.  Unemployment’s paying me pretty well, but not enough to really save anything.   According to my doc’s instructions, I have to lose more weight.  He’s put me on more meds to open my lungs, and bring down my pulse rate.  I’m ready.  My family is prepared—kind of—for whatever might happen.  I know they’re not really ready.  No one’s family is prepared for death.  Myself, I’m ready.  For fifty-five years, I’ve eaten what I want to.  I’m prepared to give that up.  I want to run again.  I want to wear something other than shorts and moccasins.  I want to be able to put on my shoes, clip my toenails, and wipe my ass without feeling like I’ve run a marathon.  I want to make love to my wife normally and not have to take a handful of pills every day.  Yeah, it is selfish I know.  But I am a child of the sixties—indulgent and self-centered.  I’m ready to begin living again—not just waiting to die early.  I want to be my shadow.  Hoka Hey!

Saturday, October 13, 2005—continued.

Minus 39 days.

I walked a little over two miles this morning.  I didn’t feel great, but neither did I feel bad.  My back hurt a little, and my right Achilles tendon ached, but otherwise it was OK.  The birthday party was a success.  I ate two pieces of pizza and drank half a cup of soda but skipped the cake.

 I’m happy to have started this journal.  I’ve been thinking a lot about how I’m going to get into eating three or more times a day.  For years, I haven’t been eating or even drinking anything all day until late afternoon.  Today I hadn’t eaten anything other than an English muffin till the pizza at 5 PM.  I guess I’ll have to buy a watch and set timers to remind myself to eat and drink on time. 

In another week or two I’ll start looking for the containers, measuring cups, and foods I’m going to need when I get home from surgery.  I’ll have to change the way I eat, the way I drink, the way I chew.  But I won’t be alone, you’ll be right there with me.  So I’m gonna wrap this up for tonight, get something to drink and take my evening meds before bed.  I found some calorie free flavored waters that I’ve been drinking but I ran out yesterday.  I hate city tap water.  My wife is working late tonight.   Later…

         

Saturday, October 15, 2005

Minus 38 days

I’m babysitting my Granddaughter and Grandson today and tonight.  It’s my daughter–in-law’s birthday and they’re going out of town.  My wife and daughter are going to Drew Carey’s Green Screen Show.  I woke up pretty early.  I haven’t been able to afford the waters that I usually drink at night.  Woke up twice last night with that horrific C-Pap dry mouth and throat.  I’ve been suffering from a mild depression for the last two weeks.   Just don’t feel like walking this morning….

      

 

Sunday, October 16, 2005

Minus 37 days

Babysitting yesterday went OK.  The kids were great.  I pigged out on things I shouldn’t and didn’t walk.  Played some online poker and lost.  Watched TV.  I’ve been doing a lot of that lately.  Just can’t seem to get motivated.   My wife and daughter went to see Drew Carey’s Green Screen Tour.  They had a good time.

Today I’ve really been depressed again.  Lying around watching the tube, not doing anything.  Sometime I’ll write a little about the issues that are causing this depression but not today.  I can’t seem to write at all.  It’s even hard to write in this journal.  I didn’t walk again. 

Monday, October 17, 2005

Minus 36 days

I’ve got to move us again.  We’ve been at our son’s for six weeks.  It’s time to move over to our daughter’s—only a couple blocks away.  There’s not too much to move, but I’m fried with moving.  It’s been less than two years since I had to move from the house on Scotts Creek.  That’s where we were for twenty-three years.  Raised our kids at the end of the road—no neighbors, a big garden, animals, and a place for ceremony and sweatlodge.  Took it for granted.  Moving a generation of accumulated stuff is hard on the spirit. 

The little house we move to in town was OK.  Small and convenient.  It cost us eight times what our country house did.  We were spoiled.  When my job ended with the Tribe, we couldn’t afford to rent it anymore.  Being homeless at 55 is different, but it’s harder on my wife than it is on me.  I was used to moving all the time.  Leaving the place on Scotts Creek was tough for her, even though her health improved.  All the mold in that old house was bad.

I did most of the moving to the house in town.  Same when we had to leave there.  Took me about ten weekends to put most of our stuff in storage and we got rid of a lot.  I’m tired of moving stuff.  It’s hard with this second me hanging on my back.  I’m looking forward to being able to do things like that again without feeling like it’s too much.

Don’t know if I’ll have the energy afterwards to walk.  That’ll be three days I missed.  Guilt is a bitch. 

My wife and daughter are leaving this evening to take my grandson for his eye operation in Davis.  I could go but I’m just not real big on hospitals right now and I like them to have a chance to be together.  If anything goes wrong during my surgery, they’ll need each other.  I am worried about my grandson though….  Time to take my meds and start moving.

Tuesday, October 18, 2005

          Minus 35 days

          I finally walked again this morning.  Two and ½ miles.  Felt good.  My depression has lifted a little.  Aside from the usual financial difficulties, things are good.  My grandson Hvshi’s surgery went well and my wife and daughter will be home this afternoon.

          The recent depression was mostly about the work I’m trying to do.  Making a documentary is always filled with problems, but two weeks ago we had a computer glitch that wiped out about three full weeks work.  So instead of being able to start the second segment with a lot of images ready to place on the timeline, we’re faced with having to go back and recapture and import everything from scratch.  Until today I just haven’t been able to face it.  I started looking for more funding—as of right now; neither of us is being paid!

I also have to look for a job, which doesn’t seem to make much sense when I’ve got surgery coming up next month.  Still I’m happy there’s unemployment or we wouldn’t be covering our bills right now.

Wednesday, October 19, 2005

Minus 34 days.

I’m finding this journal pretty boring to write so I’m sure it’s

not much better to read!  At least I’ve been drinking water again at night.  The C-Pap’s been giving me problems at night and I haven’t been wearing it more than four or five hours.  Can’t figure out what the problem is.

          Walked two point seven today.  Felt real good again.  Think I’ll bump it up to three plus miles soon.  Took care of business but forgot to eat all day.  Been playing a lot of Texas Hold-em on the Net.  Just can’t seem to write for any of the projects.  Hope that changes soon!

         

          Thursday, October 20, 2005

          Minus 33 days.

           Found out my today my insurance’s are all screwed up.  My former employer never canceled my policy (according to Blue Shield).  My employer says they did and that it always takes Blue Shield a couple of months to catch up!  My wife’s employer has been taking money out of her check for the last two pay periods but says they can’t submit the paperwork until I provide them with a paper from my employer stating they aren’t covering me anymore.  All this for the same insurance company.  It’s like dealing with the Keystone Cops.

Took my truck to the dealer to have the recalled ball-joints replaced.  I was going to walk but ended up reading a magazine instead. 

          About ten PM I remembered that I hadn’t eaten or drunk much.  I had a Snickers Bar and a bag of Cheetos around noon.  Then I had a cup of coffee around six PM.  I was going to eat, honest—but I was in a great poker game online and…the time just kinda slipped away.  Tomorrow I promise to eat, drink and walk!

          Friday, October 21, 2005

          Minus 32 days.

I almost got my wife fired today by coming on heavy with her HR rep and calling the GM about the insurance mix-up.  You tell me; doesn’t it seem wrong that they would take money out of her check when they haven’t even sent in the paperwork yet?  And when I asked, they acknowledged that I wasn’t covered during that period.  Well then that money would be reimbursed to us, right?  No, they said, only if the policy was eventually denied.  How can you take money out, if we don’t have a policy yet, I asked?  (I was probably a little louder and more insistent.)  We have to wait for a letter confirming that your other policy has been cancelled before we can submit our paperwork, they insist—also in a louder voice.  But that doesn’t answer the question about whether I’m covered during the period prior to the application when you are already taking our money? (I was probably growling by now.)   “Hello?” “Hello?”  Damn cell phones!

 I couldn’t get the rep on the phone again so I called the General Manager’s Office.  His Sec asks what it’s about.  “I have a question about policy”, I say.   She says he’ll call me back.  A few minutes later I get a call from my wife.  “Are you trying to get me fired?”

  I get a little carried away sometimes.  My problem is that I just don’t recognize a chain of command.  As far as I’m concerned, if there’s a problem you just go right to the Big Dog… the Head Cheese… the place where all bucks stop!  Unfortunately, most department heads don’t like that.  If it’s me fighting the battle, I don’t care—but my wife just hates that kind of stress.  I promised her I wouldn’t do it again and got the letter they needed.  Now my doctor’s office has to wait until the new paperwork gets processed so they can apply for the surgery under the new numbers.  Hopefully that won’t affect the date.

Remember last night when I said I’d walk, eat, and drink today?  I lied.  I didn’t mean to, honest.  It’s just that I went back to working on the documentary and skipped my walk.   After that I picked my wife up and after getting gas, took her to her physical therapy session.  Sat in the truck for another hour and ½.  By the time we got back to Ukiah it was almost seven PM.   I hadn’t had anything to eat or drink so we stopped at a restaurant and ate.  I had a sandwich, a few fries and a salad.

I told my wife I was a little worried about how I was going to break the habit of not eating or drinking all day for so many years.  Guess we’ll have to buy a lot of little containers and I’ll have to carry them with me wherever I go.  Only a week and a few days to go until my pre-op appointments.

Saturday, October 22, 2005

Minus 31 days.

I actually made myself breakfast this morning.  Well, I warmed up my wife’s leftovers from last night anyway.

  And I walked three and ½ miles after that.  Started out feeling pretty poorly, but finished strong.  I hope to be walking four miles by next weekend.

I got a good idea for a stage performance using some of my stories, poetry and music today.  Hopefully, I’ll actually work on it instead of having it stand in line with all my other dormant projects!  Not too long ago I outlined a screenplay that I think would be great—then I found out that I knew nothing at all about writing screen plays!  After reading a screenplay competition critic’s reviews of those submitted to a certain competition, my enthusiasm was dampened significantly.  Before I could start the thing I’d need to spend quite a few hours looking at other successful projects and studying the basics of screenplay creation.  I need a few clones.  Actually I imagine that this will end up just another half-finished project.  Lack of discipline and too many interests make a poor partnership for success.  I just don’t have the energy to master the many disciplines I aspire too.  The old “Jack of all trades…” adage is my anthem.

Sunday, October 23, 2005

Minus 30 days

Didn’t walk today.  Spent most of the day reading Basil White’s online journal about GBS.  Pretty funny stuff mixed with a lot of good info.  He mentioned making a note to himself to schedule surgery in the spring or early summer.  It made me realized that most of my walking is going to be done in the rain unless I can get together the money for health club dues.  I went online to see what the costs of lightweight rain gear would be only to discover what I should have already known.  Nobody makes that kind of thing in 3 or 4X sizes.  Duh! 

I played some poker and won big only to have my computer freeze up mid-play all my winnings disappear.  Good thing I don’t use real money.  Still, it always pisses me off when technology fails and I wish for my old life free of such “conveniences”.

The sole on my shoe has been flopping when I walk lately.  Reminds me of the circus clowns I saw as a kid.  My son says I need to get new shoes but I just can see that with so many other expenses coming up.  Basil’s web journal reminded me of all the things I have to get together before the surgery.  My pre-ops are next week.  I need to start keeping a list of questions for my doctor.  I’m living about three hours from the hospital and my doctor.  What happens post-op if I have an emergency?  I can’t quite figure out why I haven’t already asked these important questions.  I guess the reality that it’s all really gonna happen is finally hitting home.  I haven’t been over-eating at all lately, but neither have I been eating that well.  We had tri-tip sandwiches tonight.

Monday, October 24, 2005

Minus 29 days

Today is my wife’s day off.  We slept in and got up easy.  I went for

a walk, a little over three miles.  All my back pain is gone now when I walk.  I don’t know if I’m losing any weight, but I definitely feel better and should be a lot stronger for the surgery.  It’s been more than two years since I got this much exercise.

          I read through the GBS manual that my doctor gave me again.  I need to find the protein powder I’m going to use.  After I finish writing today, I’m going to start that list of questions for my doctor.

I realized we’re going to have to move back to my son’s after the surgery.  I’ll have to negotiate the outside stairs, but I’ll need the real bed and my lazyboy chair.  Plus, my son may be able to take me to the gym every day, especially when it’s raining. 

My daughter is getting serious about having the surgery herself.  She’s only 28, but her weight is already a serious problem for her.  I feel a lot of  guilt about not having lived a better lifestyle so my kids might have developed better eating habits.  Most of my daughter’s problems have to do with portion size, and eating the wrong thing.

I’m a little worried about the fact that I’m eating so little now that the new post GBS diet won’t be that much of a change, but then I remembered that my body won’t absorb as much either.   Also the total absence of sugar and reduced carbs should make for some success.  I hope I’m not one of the percentage of people who don’t lose more than 40 percent of their excess body weight.  Just roll the dice, baby.

Tuesday, October 25, 2005

Minus 28 days.

          Walked four and a half miles today.  Felt good.  Went into a few shops looking for things I’ll need.   Don’t feel like writing,  Kinda depressed.  Can’t seem to get anything done.

Wednesday, October 26, 2005

Minus 27 days.

           Walked four and a half miles again.  Still Very Depressed.  I just can’t seem to motivate myself. 

Thursday, October 27, 2005—Sunday, Oct 30, 2005

Minus 26, 25, 24, 23 days.

            As you can tell I haven’t been doing much.  Hopefully I’ll feel like filling you in on the minutia of the last few days…  I haven’t been walking.

Monday , October 31, 2005

Minus 22 days.

My publisher sent me a galley of my book—which they aren’t going to publish—but said she had a good meeting with her agent and some other publishers so maybe something will happen.  I wasn’t very enthusiastic.  Just can’t seem to get up for anything.  My wife, daughter and I drove to Sac today to take our grandson to his post-op appointment for his laser eye surgery.  He’s doing well.  We came back home and babysat him Halloween night.  He was so exited to see all the kids in their costumes.  I wish all children could stay between nine months and two years.

Tuesday, November 1, 2005

Minus 21 days.

Nothing to report today.  I guess I’ve stopped walking again!  I just can’t seem to do it if I have things to do in the AM.  Our computer crashed and it’s in the shop.  They’re trying to sell me a new one but I can’t afford one.  Once again I’m reminded how much I rely on having the computer around—from mapping, to writing, to information searches, to shopping—it really has become a pervasive force in our lives.  Even my wife has missed it. 

Wednesday, November 2, 2005

Minus 20 days.

I’m back working on the documentary again.  Making some progress in re-importing everything that was lost.  Got the first five minutes pretty well set, but I sure miss my computer for image searches.  I still am not eating or drinking from the time I get up until around five or six PM.  I know that not eating all day isn’t a good thing but I wish I could remember to drink some water!  Honestly, I just don’t even think about it.  I hope I’ll be able to adapt to the post-op schedule.  Still not walking.  My doctor’s office called to tell me it looked like my insurance was up and running again so tomorrow I go to my pre-op appointments.

Thursday, November 3, 2005

Minus 19 days

Drove the three and one half hours to my pre-op appointment listening to a CD of Bob Dylan favorites.  Dylan was my imspiration for learning and guitar and I started out singing his music (along with favorite poems).  It was a nice drive.  I was reminded that long distance driving makes me feel more at ease and comfortable than any other activity in my life.  Guess it has to do with all the long distance drives and moves I’ve been on since I was a little kid.  I love the sights and smells of the open road, particularly the varying landscapes, birds, and green growing.

My pre-op appointment went well.  My nurse, Linda, made every effort to answer any questions I had, plus giving me the best description of what to expect I’d been given so far.  I’m paraphrasing her, with a little embellishment of my own of course—but basically she said they were going to stab me deep a couple of times and rearrange my insides.  If I think about it like that, I realize how serious it us and I’m ready for all the complications, pain, and discomfort that comes with it.  That’s OK with me.  I appreciate the honesty.  They can talk about laproscopic surgery as being the least invasive all they want, but the truth is they stab you deep and rearrange your insides.  It’s just neater than a knife blade and they sew you up!

On the down side, she couldn’t find my most recent blood panels, so when I went to the hospital afterward for my pre-op appointment they had to stick me again in both arms.  There was also a mix-up with whether or not I could get the lab work without registering for an out-patient service.  Fortunately, for me, they went out of their way to make it simple for me and just took the blood and sent me on my way.  It seems like a pretty good hospital.  I finished all my appointments in three hours and was on my way for the long drive home.  I’m supposed to be taking my vitamins already—so I’ll pick ‘em up tomorrow.

Friday, November 4th, 2005

Minus 18 days.

Went to work on the documentary again today.  Was making some good progress when my wife called to tell me to come home—a family emergency.  When I got there it wasn’t much of an emergency so I went to check on my computer.   They have to scrub it and reinstall windows—again!  I told ‘em to go ahead, I just can’t afford a new machine.

Later my wife and I had dinner at the show—two hot dogs, popcorn, and lemonade.  It’s been a really long time since we’ve been to the show on Friday, even if it was only a matinee.  We enjoyed the show and the previews too and decided we should go more often.  Nothing like the big screen!  I haven’t been as depressed as I was.  I guess things are accelerating fast enough toward the surgery now that I’m getting more philosophical. 

Saturday, November 5, 2005

Minus 17 days.

Today was a mixture of best and worst.  I worked on the video for about six hours and things were really flowing well.  Creatively I was flying.  Then the computer crashed and I lost it all.  Almost six minutes.  Doesn’t seem like a lot but when there’s no log of all the three to five second clips plus the slow-mo and motion editing you do—when you try to remember what you did it’s just one big blank.  After an hour of hell, I shook it off and got back to work.  Three hours later I had about half of it restored but I don’t think it was as good.  I called a friend who was buying my tractor to help offset the money I’m paying my surgeon up front and he told me he had the money.   That lifted my spirits and so I went over and visited with his brother and him for about two hours.  We’re long time friends who don’t get to visit too often so that smoothed over the raw feelings I had about the video crash.  The evening finished up with me going to one of my publishers 50th birthday party.  There weren’t many people there I knew but it was still a good time with a big plate of Mexican food for further comfort.  His band performed for the first time and they were solid. 

My publisher’s husband, who is a doctor, offered to buy my post surgery supplements at wholesale.  That should save me at least one hundred dollars a month.   He also offered to teach me a method of teaching my body to obey commands to help with the habit and behavior modifications and management I’ll need to master.  When that happens I’ll write about it.  I picked up my wife from work at about 9:30 PM and we drove back to Mendocino County.

  Haven’t walked in well over a week now.  I’m wondering if I’ll actually start again before the surgery.  With all the rain, it ain’t easy.

Sunday, November 6, 2005

Minus 16 days.

Watched the Raiders lose a heartbreaker and went to buy my vitamins and protein powder.  It’s pretty confusing trying to keep the carbs down, and get all the vitamins and minerals.  I couldn’t find exactly what I wanted.  My doctor had an advertisement in his office for a company that manufactures vitamins and supplements specifically for bariatric patients.  As a last resort I’ll order those, but first I’ll send the list to Dennis, the doctor I mentioned.  In the meantime I just bought some basic vitamins and I’ll take those until my surgery. 

The whey protein powder seems to be easy to find but I can see I’ll have to reduce the amount of fluid I mix with it to keep my fluid intake in line with 80-90 grams of protein and less than 48 ozs of fluid.  That’s going to make the drinks a lot thicker—and probably a lot less tasty as well.  Somehow I don’t think I’m going to care much about that at the beginning.

I hope.

          Monday, November 7, 2005

          Minus 15 days.      

Ran around doing errands today.  Got a flu shot.  Only a couple of weeks to go.  I guess we’re going to have a dinner next weekend to take the place of Thanksgiving.

Tuesday, November 8, 2005

Minus 14 days.

My daughter got her bankruptcy finished today.  Went down with her to the city and had lunch with our friend, who is also the lawyer that helped her.  We did all the paper work.  I’m going to a seminar to learn how to do that for people, but I don’t know yet if I’ll actually try to make a business of it.  I started taking the multiple vitamins yesterday.  My stomach has been terribly upset since.  I forgot that you should always take them with food.  My doctor wants me to get the Flintstones Kids because they’re chewable and take two, but I already spent a ton on the adult ones soooo… I’m going to get them for post surgery.   I tweaked my arm today where I broke it.  I hope the metal plate isn’t coming apart!

Wednesday, November 9, 2005

Minus 13 days.

Worked on the documentary today and got back to where I was before the crash.  My arm was really hurting too.  I don’t think long hours pushing a computer mouse helps.  It started to swell up and I called my doctor.  The surgical assistant called me back to tell me that my recent blood panel had showed positive for a stomach bacteria that could cause ulcers post surgery.  She called in a script for a PrevPac, a bundle of antibiotics.  I have to take them twice a day for twelve days.  MORE PILLS!   I also have to get to my orthopedic doctor to check for infection in my arm.   This afternoon I started getting a sore throat.  I didn’t mention that to my nurse.

Thursday, November  10, 2005

Minus 12 days.

It was so bad today I could barely swallow so I went to Indian Health.  After I told him that I started taking the PrevPac antibiotics and that I had an appointment with my orthopedic surgeon for my arm, he threw up his hands and said he couldn’t do any more for me—a waste of ten dollars!  I hope the antibiotics work, it would be just my luck to get sick and have to postpone the surgery.  My orthopedic doctor told me that the swelling and pain was just the result of some “tweaking” of the bone and the plate.  The x-ray showed no damage and no infection.  They faxed my surgeon the report so I’m in the clear on that one.  My throat is still pretty sore if I don’t take ibuprofen, otherwise I think my cold is getting better.  I got another five minutes done on the documentary today.  I haven’t walked at all lately. I miss it.

Friday, November 11, 2005

Minus 11 days.

Went shopping with my daughter for the dinner tomorrow.  It’s getting more like a Thanksgiving Dinner every day.  I spent the rest of the day working on the documentary.  Five more minutes in the can (finished). My wife hasn’t been too happy lately.  I hope she holds up OK.  She plans to stay at the hospital with me the entire time.  I don’t know where she’s going to stay since it’s two to a room with no space for a cot.  She’s stubborn enough to make it happen though.  She’s going to be worn out when we get home!

Saturday, November 12, 2005

Minus 10 days.

Today is this year’s Thanksgiving Day.  My wife had to go to work early so I went with her and worked on the documentary.  Had another productive day.  We’re about two thirds done now.  One or two more days of shooting should do it.  One of the Big Valley tribe, Tim Ramos, has been shooting a narrative film on location here.  He got Gary Farmer to play a part in it.  Gary is one of my favorite Native actors.  I wish I could have met him, but we missed the final day. 

We rushed home when my wife got off and had a great dinner with all the family.  It was very nice.  I didn’t overeat and the food was great!  These kinds of meals I’ll miss.

Sunday, November 13, 2005

Minus 9 days.

Today is a lazy day for me.  I slept in and really don’t have anything planned other than keeping up this journal.  I’ll watch a lot of Sponge Bob until the grandkids go to their father’s.  My grandson Hvshi has a bad cold.  Hope I don’t get it, but I can’t stop holding him.  One week to go until I begin the pre-op regimen to clean out my colon and intestines.  The directions say to stay close to the bathroom.  That doesn’t sound like much fun!

Monday, November 14—Friday, November 18, 2005

Minus 8 to 4 Days

I thought that things might be accelerating at this point but there really hasn’t been much to write about.  We’ve finished most of the second half of the documentary and I maybe have a part-time job after the beginning of the new year.  We went to see a house and it was everything we could ever want.  Of course we didn’t get it.  No one would rent to Indians if they had alternative White people waiting in line.  No disrespect meant to the other applicants—that’s just one of the realities of being Native.

My daughter took her kids to see the new Harry Potter movie and I stayed home to watch my grandson, Hvshi.  My wife was working.  He threw up the entire time and wasn’t feeling good but as soon as his mom and brother and sister came home he perked right up.  Kids!

Saturday, November 19, 2005

Minus 3 Days.

I’ve been eating what I want to but not splurging or being gluttonous.  Actually, I still haven’t been eating much at all, we haven’t had any money for food.   Today my daughter is preparing seasoned pork chops, caesar salad, noodles and rolls.  I’m looking forward to it.  It’s been a week since I had a full meal.  I may go for a walk today, just to be outside.  It’s been seventy degrees here and beautiful every day.  California fall weather—crisp in the morning, warm in the afternoon, green grass and brilliant blue skies…what can I say…it’s as good as it gets.

We’re setting up to scan digital transparencies of Grace Hudson’s paintings of Pomo people for use in our documentary.  The Sun House in Ukiah is graciously helping us.   The paintings should really make a difference in the quality of the documentary.  On the down side, our camera has been malfunctioning and a full day of shooting left us with only a few usable clips.  As of today, I’m forgetting about all that until I’m recovered enough to get back in the saddle.

I’m wondering whether to go out and buy some books for the hospital.  I just don’t know if I’ll be up to reading them.  Other than that, I’m just focusing on appreciating the world and all that’s in it.  My wife is getting a cold, but so far I’m well.  I hope hers doesn’t get too bad--hanging out in the hospital isn’t fun if you’re a sick visitor.  And since she’s taking her vacation to be there, she’ll only have work to come back to!  She’s a wonderful person.

Sunday, November 20, 2005

Minus 2 days.

“And the condemned man ate a hearty meal”.  Somehow that’s what it felt like last night.  I had Thai curry shrimp with a sweet chili sauce and a twice baked potato.  I cooked it myself.  Both my wife and daughter are throwing up with the flu.  Last night they went out to see the Commodores and they brought my wife up on stage.  They sang “Three Times A Lady” for her.  She was in heaven.  Then the next night she’s puking her guts out!

Poor woman.   That’s the story of her life.  So they’re sick and I’m eating my last meal… .  I had watched the movie “Chocolat” and craved some real cocoa.  I made two cups and savored them.  Tomorrow is the dreaded “bowel cleansing regimen”.   Oh, I forgot.  I walked yesterday.  It was nice but I only went about a mile and I was exhausted.  I’ve lost all the strength I gained. 

 

Monday, November 21, 2005

Minus 1 day.

Started my clensing pills a few minutes ago.   Twenty-eight pills in three and one half hours.   Everybody is getting that flu at the same time.  So far I’m hanging on.  Wouldn’t it be fun for me to get it tomorrow during my surgery?  Such is life.  Just as long as I don’t get it today and have to postpone!  I don’t think you’ll want to hear too much about today so I’ll see you after the surgery.  Later.

Tuesday, November 22, 2005

Day 1

We got up at 1:30 AM to make the drive to the hospital.  My last meal was Sunday around 6 PM.  I’m feeling the spaciness of the beginning of the second day of fasting.   I’m not allowed to drink this morning either.  Three and 1/2 hours later we pulled into the parking lot—1/2 hour early.  We both went to sleep until 6 AM.  After checking in we were led by our introductory nurse, along with two other couples, to our ready position of bed, gown, paperwork, etc.

  An hour later the Dr arrived to ask if I had any questions.  He was smiling, positive and confident.  The anesthesia specialist arrived next.  He was wonderful—humble, soft spoken but self-assured, compassionate and competent.  I was especially grateful for his warm assurances to my wife that they would take good care of me.  The rest of the surgical team introduced themselves and told us the expected duration of the surgery.

Next came the IV and the initial shots and pills to get things underway.  I wasn’t nervous, just ready to go.  By 7:45 AM they wheeled me toward the OR.  I don’t even remember going in the door, I was out that fast.  I didn’t wake up at all in the immediate recovery room that I remember but I do remember waking up in Intensive Care.  My doctor assured me that everything had gone perfectly and I drifted in and out of consciousness for the next five or six hours.  My wife went to get something to eat.  They weren’t able to find a fold-out chair for her but provided her with blankets and pillows in the ICU waiting room.  She was still feeling pretty poorly and went to bed early.  I began to wake up around 9 PM.  My throat was really sore from the breathing tube in place during the surgery.  Fortunately it was gone by the time I woke up.   The catheter was really uncomfortable as well.  This was my first time suffering that intimate imposition.  Hope it’s my last!

I still wasn’t allowed any water to drink but was give a sponge on a stick to swab my cotton mouth away.  Occasionally the catheter would begin stinging terribly and I knew I was urinating.  I was pressing my pain button about every fifteen minutes.  During one hour I pressed it about every eight minutes.  Finally the ache in my stomach went away and I managed to find a position where the catheter didn’t sting.

  Around 10 PM I felt good enough to start reading one of the two new books I’d purchased on Saturday.  I never get to buy books so I was really looking forward to it.  I didn’t have my glasses but the print was just large enough at arms length that I could make it out.  Getting older is a bitch!  I read until midnight and then fired up the old C-pap machine and crashed.  Oh, I forgot,  I also got a breathing machine I was supposed to use every 30 minutes.  Actually, it was just a tube that lifts a plastic disc to measured lines in another tube.  It’s supposed to help get the lungs functioning to avoid pneumonia—something that I do need.  I’m prone to pneumonia.  It’ll probably be the bug that eventually takes me out.  I began to use it faithfully. 

Wednesday, November 23, 2005

Day 2

The faces of the nurses changed all night and I woke up continually to push my pain relief button.  My first nurse upped the dosage twice until I got comfortable and then reduced it once when my heart-rate fell to a level he didn’t like.  Finally I was able to slow my self-medication down to once every half hour. 

Around three AM I really started to sleep well, but by seven I was awake again.  My sore throat and the stinging of the catheter were my main complaints.  The pain medication seemed to take care of the incision pain, knocking it down to just a soft dull ache.  I was given a few ice chips to suck on and that helped my throat some.  Around 8 o’clock my day nurse arrived and I began to concentrate on the real process of recovery, breathing into the lung tube every 30 minutes, limiting my pain medication, keeping an eye on my heart rate, blood pressure, and oxygenation.  Around 9 AM she got me out of bed to sit in a chair for two hours.  I wanted to walk but had too many wires tethering me plus the damn catheter.  It was driving me crazy!  My nurse began the process of finding out if we could remove it, especially since I’d been on my feet already.  It took three more hours but by then I was making real progress on the breathing tube, increasing my lung function substantially.  About Noon she got the permission to remove it.  Now that was painful! 

Since my Doctor was off today, another Doctor was supposed to come and check on me to give me permission to leave the ICU and go downstairs to the regular recovery stations where I could begin the Stage One Diet and Walking.  He finally made it around 1;30 PM and by 2:30 we were saying our goodbyes in the ICU.  I was very impressed by the professionalism, attentiveness, and compassion of everyone working there.  I vowed to send them all a card, and a couple of them a present.  At 6:15 PM I was in the wheel chair heading downstairs.

By 2:45 we were led into room 111 downstairs.  It was a fairly good sized room with 2 beds—both empty.  We unloaded our stuff and the wheelchair attendant helped me into bed and hooked up my oxygen and my pain med IV tubes.  A few minutes later another attendant came in to set up the overhead rack on my bed that gives me a little trapeze swing to grab onto to shift around in the bed.  We joked about what it was costing to put it up and what I would be charged compared to what he was getting paid.  Another guy wheeled in a recliner “sleeping” chair for my wife and we settled down to watch the 14 channels on TV.   No nurse yet.  We waited.  And waited…and waited.  An hour later a woman came in an introduced herself as my nurse, but left immediately saying she would return in a moment.  Another girl came in saying she too would be helping, but also left right away.  We waited another forty-five minutes.  Almost two hours later we were still waiting for them.  I decided it was time to walk.  I visited the bathroom for my first urination since the catheter removal and like they say in the movie “Wyatt Earp”, Hell Followed After!   I’ve never had the clap, but that is how it must feel.

When the late duty nurse and attendant came in I got my first care in the regular post operative treatment unit.   Around six I had my first meal of strained beef broth along with a cup of oral pain suppressor.   They want to wean me off the pain button.   I have to say, despite not being a previous fan of soup of any kind—it was good.   The pain medicine was icky-icky.  I tried to eat all that they brought me and within an hour I felt bloated and gaseous.  Fortunately some of the gas was released into the ether and I wasn’t too uncomfortable.  But I decided I didn’t want the oral pain medicine anymore.

By now I was having very little pain at all from the surgery.  Most of the discomfort was centered around one or two of the “poking places”.  I used my pain button sparingly throughout the night.

Thursday, November 24, 2005

Day 3

Woke up around 3 AM feeling bloated and uncomfortable.  My wife had had only a restless night sleep in the foldout chair next to my bed and her cough was noticeably worse.   I decided to unplug my IV tower and go for a solitary walk.  Walking unaccompanied down the empty Thanksgiving Day corridors of the hospital felt pretty good.  The whole surgery was turning out to be significantly less painful than I imagined.  I’d pushed the button only a few time the previous night, mostly due to that flu-like ache in my lower belly.

A few hours later I was having my first breakfast of four ounces apple juice to be mixed with four ounces of water.  Let’s see, eight ounces at one ounce per fifteen minutes comes out to—two hours for breakfast.  By the fourth ounce I was feeling bloated.  I kind of forced myself to drink it all and really began to feel pretty bad.  It wasn’t that it was painful, although there was a kind of stomach flu ache to it, but the bloated full feeling was worse. I went for another walk, doubling my distance. 

Around ten, my doctor came in to see my progress.  He’d seen me walking in the halls and was happy with my progress.  My wounds were healing up nicely with no sign of infection.  He passed me onto the stage two diet and I told him about my after dinner symptoms.  He told me if I felt full to stop—I didn’t have to eat it all.  That was a relief.  However now I was confused.  How am I supposed to get all the hydration and nutrition demanded by even the stage two diet if I’m not consuming the recommended amounts?  Obviously, at the moment my doctor wasn’t concerned so I decided I shouldn’t be either.

We’d hoped he might let me go home today, but I had a slight temperature so he said we’d reevaluate the situation tomorrow and I probably could go home then.  I was OK with that.  My pain was practically gone and I was up walking again and feeling pretty chipper.

Lunch came and I had my first stage-two dinner of strained cream soup and light yogurt.  I have to admit it was pretty tasty.  Two hours later I got my first four-ounce protein drink—chocolate, no less.  It was very thick and almost too chocolaty for my taste.  Also it seemed to take forever to drink. 

My wife’s condition worsened.  We had no choice but to take her to the emergency room.  I walked her down there—becoming a familiar face in the halls now.  After a couple of hours she came back feeling better—nice to be near the facilities!  It clouded up outside and began to rain.

My doc and I had decided to see how I handled Vicodin.  I asked them to crush it for me and they watched me in disbelief as I downed the dry powder and sipped a little water.  It wasn’t nearly as bad as the syrup they’d given me the day before which took almost fifteen minutes to finish.

  I walked again.  The nighttime halls empty.  This was getting pretty monotonous, I couldn’t wait to walk outside again. 

Friday, November 25, 2005

Day 4

I woke up early again, feeling thirsty.  I realized as I got up to walk that my IV tower was turned off so all through the night I was not getting hydrated.  Now I began to worry again about how much I was supposed to be drinking.  If you do the math, someone would either be eating or drinking almost fourteen to twenty hours per day, not counting walking time.  I just don’t see how that’s possible.  If I’m supposed to stop when I get the full feeling, and I don’t feel hungry to begin with—how do I tell that I’m full?  My doctor said it would be pressure in my upper stomach.  But if I’m allowed to stop eating or drinking before I’ve finished my allotted ounces, how will I get the required amounts?  Didn’t I ask this question before?  It seems to me there is a contradiction between the written dietary requirements and actual real-life practice.  Anyway, my breakfast came of cream of wheat and yogurt—and once again I ate about half of it.  Three or four ounces.

I had no pain at all last night and used no pain medication at all.  I think I’ll be going home today.  They brought my wife a wonderful breakfast of scrambled eggs and salsa, bacon, sausage and english muffins.  As I nibbled on my cream of wheat, I drooled watching her eat and realized one of the big myths I had built in my mind about the gastric bypass surgery.

Somehow I had expected all my cravings to disappear.  I knew that I wasn’t going to get hungry very often—I didn’t get hungry much before the surgery.  But, for whatever reason, I hadn’t expected to have the same cravings!  I still craved peanut butter at night—the same way I did before the surgery.  In fact, I craved all kinds of things now.  But the difference is, no matter how much I want them and how available they are, I physically can’t eat them.  Whoa!  Big reality check!  I’m only five days into post surgery, but I realize why people even much further along get depressed.  I realized that most of my reasons for eating have been psychological not physical.  They tell you that of course, you read it in all the literature about obesity, you even recognize it in your eating habits—but it doesn’t become a tangible reality until you have to eat.  Then the differences between eating for sustenance and eating psychologically become profoundly recognizable.  Suddenly, doubts begin.  I squash them like a bug!

The staff seemed to be in limbo around here.  Even some of the nurses didn’t seem to know quite what was going on.  We’d go many hours without anyone checking up on us.  In their defense, they have only one staff attendant and three nurses per sixteen beds—and a lot of those patients are in worse shape than me, that’s for sure.  I guess they bring in contract nurses for some shifts.  It doesn’t seem to me like these nurses get much help or direction from the regular staff, but perhaps I’m mistaken.  Anyway, though my nurse last night seemed generally competent, she knew nothing about my surgery or what was going on.  This morning we’ve hardly seen anyone at all.

The nutritionist came to see me.  I think she answered most of my questions, except for the logistics of how much I’m supposed to eat or drink as opposed to how much time that’s supposed to take.  She gave us some ideas for protein drinks, but when my wife went to the store she recommended—the store wasn’t there anymore.  Once again, I think the disconnect between theory and practice has been breached.

My doctor came in and gave me instructions for emptying the drain bulb attached to my belly and for changing the dressing.  I’m supposed to call in a few days to get an appointment for next week’s end to have the drain removed and a general checkup.  My fever is gone—so I’m going home pretty soon.  He gave me a script of Vicodin but I doubt that I’ll use it.  I haven’t been in any real pain since the second day.  I’m supposed to watch for redness, chest pain, pain in my shoulders, etc.  Also I’m supposed to stop a few times on the way home.  That’s to keep any leg clotting from happening on the long drive.  He’s seems pleased with my progress and told me that I can walk as much as I want as long as I stop when I get tired.  He said I really can’t hurt the surgery at all with exercise. 

My wife went and got some things we need and the nurses gathered up everything they could to help us—mostly plastic measuring cups and the like.  I watched the Longhorns beat the Aggies on TV while we were waiting.

At about 1:30 PM we said our goodbyes (we’d been getting the names of all the staff members in each of the various care units to send them thank you cards) and the orderly brought my wheel chair.  The rain is pouring today.  It was refreshing to get up and walk to the truck.  I’m ready to go home.  Unfortunately for me, I had to sit for an hour at the drug store to get the Vicodin script filled (the one I never used).  That was pretty unpleasant.  After that though, the ride home flew by, and by 6:30 PM I was home. 

I emptied my drain bag and drank a very gucky three ounces of protein powder mixed with sugar free fruit flavored water.  I vowed that was the last time for that particular recipe and went to bed. 

It’s clearing up outside.

Saturday, November 26, 2005

Day 5

My wife and I walked down to my daughter’s before breakfast to get coffee filters and see how walking outside is.  It was beautiful, with the sky a bright blue and the sun shining—a crisp autumn morning in Northern California.  I enjoyed the walk but I didn’t feel like walking miles and miles.  Besides, it’s time for breakfast.

Breakfast.  The word seems more real now.  Neither does it evoke quite the same quality image it used to.  Cream of wheat cools off pretty fast in one-ounce containers.  Cold cream of wheat without butter and milk seems very much like the breakfast Neo ate with the crew in the movie Matrix, after he was brought out into the real world.  Somehow the adventure has lost its shine, now its just work.  And don’t let anyone tell you its not work to take forty-five minutes to eat three ounces of cold cream of wheat!

Not much happening of interest right now.  Lots of time eating and drinking.  In the afternoon my wife and I went to WalMart.  With the weather cooling off my preferred attire of shorts and t-shirt is no longer functional.  I bought a pair of 2X sweats and a 3X zip-up hooded sweatshirt.

We went to two or three different stores and by the time we got home I was pretty beat.  My drain is slowing down a lot.  I started out draining fifty milliliters each emptying.  Now I’m down between twenty or thirty a day.

I’m still not drinking anywhere the amount of liquid and protein I’m supposed to.  Hopefully, I’ll figure it out.  My wife changed my dressing.  I’ll update the journal tomorrow.  I need to get back to writing again.  I can see the recoup time from this is short.  Only five days and I’m up and active—to a point!  My disability is sure not to last long.  I haven’t stepped on a scale yet but I can’t have lost much weight.  I can see why people who eat normally drop it so fast at first—you’re virtually not eating at all for three or four weeks.  Oh—just got a craving for golden pepperocines (can’t spell it without looking at the jar).  Must be time to sleep.

Sunday, November 27, 2005

Day 6

Got up and walked a little over a mile this morning.  I was beat when I got back.  I’ve been drinking those artificially sweetened flavored waters and I think they may be responsible for some the minor bloating and aches I have when I drink.  I’m going to straight water for awhile and see how it goes—except for the two ounces of coffee I’ll have this noon.  It’s always almost noon by the time I finish my cooled off cream of wheat and jello. 

I’ve been working on the journal for awhile and I’ve caught up.  I need to go for another walk before my next eating session.  Looks like I’m only going to eat twice a day and my liquid and protein intake is a quarter what they say it should be.  Oh well.  I only drained ten ml last night and almost nothing today.  I think its drying up.  Hope that’s normal.

  We’re going to take a drive by the theatre soon to see when the new King Kong is playing that my wife wants to see.  On Monday I call for my next appointment, pick up my check and start paying December bills.  Oh fun.  Life in this society is depressing enough without cream of wheat.  Still, I am enjoying my strained cream of chicken and mushroom soup in the late afternoons, and my yogurt.  That’s yet to come today, so all’s well.  I’m gonna take my first real shower tonight.

Okisheh (later).

Monday, November 28, 2005

Day 7

Seven days out and I’m starved.  Losing weight, but starved.  No, I’m not hungry at all; I’m just suffering the psychological effects of American overeating withdrawal.  For me its not even about overeating but about the lifetime habit of being able to eat whatever I wanted to and having a constellation full of choices.  I can’t even begin to tell you how many different things I’ve craved in the last twenty-four hours.

I walked about two and ½ miles yesterday.  I felt pretty drained each time on the way home but no pain or real discomfort at all. 

I’m still struggling to discover how to get the right amount of protein, fluid, food, exercise, and sleep while still having time to live a life.  I can tell it won’t be easy.  Here’s the scoop.

The paperwork says I’m supposed to get a minimum of forty-eight ounces of fluid in a day.  But I can only take in a maximum of four ounces per hour.   Do the math.  That’s twelve hours of drinking time to get hydrated.  Now the meals, three a day, at forty-five to sixty minutes per.  We’re up to fifteen hours.  Before and after each meal I’m supposed to have a hiatus of thirty minutes.  Add three hours.  Now we’re up to eighteen hours to achieve meal and protein requirements and hydration.  But we also have to exercise—optimally three times a day minimum.  I want to allocate an hour each time, but for our purposes we’ll say ½ hour per walk.  That’s one and ½ hour for exercise.  Our total time is now nineteen and ½  hours—which leaves us four and ½ hours to sleep and bathe and do all the other things that cannot be done while we are eating drinking and exercising.  To be absolutely fair, perhaps we should add back on the one and ½ hours of time before and after meals that we should not be hydrating or taking in extra protein.  Now we have four and ½  hours to sleep and three hours to do all those other things.   I don’t know about you but I need more than six hours sleep—which means I probably won’t eat, drink, or exercise up to the standards set by the medical profession for my post surgery recovery and maintenance.

My daughter says she thinks it’s Frankenstein Science—medical techniques pushing the limits before nutritional science is ready.  She wanted to have the surgery—now she’s having doubts.

Went to town and stopped by to check my weight at the doctors.  I am now at 333.4.  That’s probably fifteen to seventeen pounds lost in seven days.  Not bad.  On the other had I don’t feel much different than I did when I was young and fasting.  I don’t feel hungry—but I think about food twenty-four seven. 

I did find a new protein powder that will help me reach all my protein requirements in about four hours.  That’s a lot more efficient than my other one and it tastes better too.  The most difficult part of all this is getting enough hydration.

My drain is really no longer functional.  I have my first post-op appointment on Friday to get it removed.  It’s a pain in the butt.  So is the rain outside.  I walked about three miles today—even with the rain.  It let up just enough for me to walk.

Tuesday, November 29, 2005

Day 8

Walked a total of four miles today.  2X2.  I have to admit I was pretty worn at the end both times, but not exhausted. I have to admit though, it feels good to walk.

I woke up this morning really feeling dehydrated. I live to drink.  An ounce every fifteen minutes is pretty hard for me—just as I thought it might be.  I find myself watching the clock a lot, waiting for the next fifteen minute period to begin.  

My drain has been leaking some but all my incisions are healing nicely.   It’s draining about ten to fifteen milliliters per day.  I can’t wait till it’s out.

I haven’t gotten sick, which is a real blessing.  My calves and lower legs felt a little strained and sore tonight, probably from all the walking.

I got a job offer today.  And my agent called to tell me she needs all my books finished and ready to go in order to shop them.  I’m a long way from that.  Guess it’s time to bite the bullet—either I’m going to try to make it as a writer, or not.

Wednesday, November 30, 2005

Day 9

I woke up with a pain in my collar bone and shoulder top this

 morning.  It’s cold, but not raining.  This is my wife’s first day back at work since my surgery.  No transport available for me.   I needed to walk into downtown to go to the bank, get the museum photo shoot scheduled, and go to the post office.  It was about a three and ½  mile walk.

By the time I got to the museum I was pretty weak and I’m sure my voice sounded like I was strung out on something.  I went through the exhibit and wrote down the numbers of the paintings I need to scan for the documentary.  After that I walked to the post office.  On the way back I really needed to sit down for a few minutes.  I was pretty beat by the time I got to my daughter’s.

Right here I should mention I’ve gone back to drinking coffee again.  And also experimenting with protein shake recipes.  In my book it says getting adequate protein is the number one priority, so I’m drinking two twelve ounce protein shakes a day.  That’ll make sure I get at least sixty to ninety grams of protein.

Here’s my morning fixer upper.  I take my twelve ounces of coffee, mix in some light coffee creamer and two dippers of protein powder.  Then I add two teaspoons of no sugar-added chocolate Nestles Quik.  It’s not bad.  I start drinking it right after breakfast and usually finish it by lunch.  Presto, forty grams protein.

I spent most of the day working on my novel.  I found that for some reason I only have about one hundred and eighty pages in the desktop.  Where the rest is, I’m not sure.  It is my oldest project and I have a sneaking suspicion that the rest of it is either sitting in my file cabinet in storage or in a project box, also in storage—in hard copy only.  That means I’m going to have to type the rest in before I can finish.  Whoopee!  To make my day even better, I found that the format it’s saved in doesn’t fit the writing program I’m working with.  That means going through it page by page and moving it all around manually.  Oh joy. 

I reformatted about a third of the book and was so fatigued I practically crawled into the truck when my wife came to get me.  Tomorrow I’ve got more projects but it started pouring again tonight.

Important Reminder.  Remember to schedule your surgery when the weather is good!  Too late…

My credit card bill came and I found out I had overdrafted my account by about five hundred dollars just before the surgery.

Second Important Reminder.  Don’t go hogwild spending just before your surgery.  You might just survive…

I took another hot shower tonight—it felt great.

Thursday, December 1, 2005

Day 10

Counting the minutes until my next drink.  This sucks.  I woke up at four AM to drink.  It seems I’m establishing kind of an early morning routine—sleep well until four and then sleep in fifteen minute periods until we get up.

I woke up to find my drain had started working again during the night.  It must have been the hot wat